Privacy Policy

Introduction
We have created this statement to demonstrate our firm commitment to your privacy. We do not collect personally identifying information about you when you visit our site unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our Web site. This document was revised 6/9/2023.

1. Use of Links
Throughout our Web pages, we provide links to other servers which may contain information of interest to our readers. We take no responsibility for, and exercise no control over, the organizations, views, or accuracy of the information contained on other servers. Creating a text link from your Web site to our site does not require permission. If you have a link you’d like us to consider adding to our Web site, please send an email to jambroz@mnovarian.org with the subject “Link request.”

2. Use of Text and Images
If you would like to publish information that you find on our Web site, please send your request to jambroz@mnovarian.org. Text or images that are posted on our site, are with the permission of the original copyright holder. Information about using our logo and images is available by contacting jambroz@mnovarian.org.

3. Accessibility
This Web site is designed to be accessible to visitors with disabilities, and to comply with federal guidelines concerning accessibility. We welcome your comments. If you have suggestions on how to make the site more accessible, please contact us at info@mnovarian.org.

4. Donor Data Collection
We collect and store only the following information from both your online and offline contact if provided: Your email, phone number, birthdate, spouse’s and children’s names. We also collect the following information: If you are a recipient or applicant of a MOCA grant or financial award, your donation amounts, dates and purpose, donation tribute data including name and recipient address, event registration, auction item donations/purchases, sponsorships, if you were provided with a MOCA Cares Kit or MOCA Masks with Love, and if you are a survivor.

We do not use cookies to collect data.

5. Online Profile Updates, Registrations and Donations
If you complete the sign-up for email, register for an MOCA event or donate to MOCA and share your personally identifying information, this information will be used to provide you with tax deductibility information and/or more targeted content. We may use your contact information to send further information about our organization or to contact you when necessary. At Minnesota Ovarian Cancer Alliance (“MOCA”) we value our donor relationships. We protect our donor privacy by safeguarding donor information for both online and offline donors.

Bloomerang database:

Our database is hosted by Bloomerang and has a policy statement at: https://bloomerang.co/privacy-policy

At times MOCA uses outside payment portals for registration and donation transactions. Their privacy links are:

BidPal/OneCause:
https://www.onecause.com/security-privacy-policy/

http://home.iatspayments.com/privacy-policy/

Qgiv:
https://www.qgiv.com/privacy-policy

https://support.qgiv.com/hc/en-us/articles/115012660228-Qgiv-Compliance-Information

All offline content is stored in a secure area in the MOCA office, and according to our document retention policy, stored at a secure offsite document storage facility and destroyed according to federal guidelines. MOCA will not trade, share or sell a donor’s personal information nor will we send mailings on behalf of another organization. MOCA will only share personal information once a donor has given specific permission. You may contact the MOCA office at 612-822-0500 or email info@mnovarian.org to review or update contact information on file by MOCA. Donors may request to discontinue contact (opt-out) through MOCA’s Policy on Discontinuing Contact Upon Request, see the “Discontinuing Contact Upon Request” section below.

6. Sending us an Email
You also may decide to send us personally identifying information, for example, in an electronic mail message containing a question or comment, or by filling out a Web form that provides us this information. We use personally identifying information from email primarily to respond to your requests. We may forward your email to other employees who are better able to answer your questions. We may also use your email to contact you in the future about our programs that may be of interest.

We want to be very clear: We will not obtain personally identifying information about you when you visit our site unless you choose to provide such information to us. Providing such information is strictly voluntary. Except as might be required by law, we do not share any information we receive with any outside parties.

We won’t share your name or email address with any outside parties.

7. Security Precautions
While we use industry standard encryption software to protect confidential and sensitive information online, we also take commercially reasonable steps to protect your sensitive information offline. All of our users’ information is restricted and password protected at the MOCA office. Only individuals who need the private information to perform a specific purpose are granted access to this sensitive information. These individuals have agreed to hold such information confidentially and to use such information only for the purposes for which that information was provided.

Furthermore, certain programs and/or operating systems may maintain information on the computer used to contact our Web Site. As such, each individual user should be cautioned and are hereby directed to refer to the user manual(s) provided by the software publisher of the operating system and/or web browser for information about the security and privacy procedures that are available. MOCA can assume no responsibility or liability whatsoever for the operation and/or data collection procedures employed by each individual user’s operating system and/or web browser.

MOCA does not have access to online transactions involving credit card information. Mail-in credit card transactions are processed by our Executive Director and Finance Manager. Credit card information is blacked out after processing and no individual has access to the number after it is processed.

MOCA does not store credit card information. We currently use Qgiv, One Cause, and Bloomerang and all third party payment providers use SSL encryption technology. These safeguards are not a guarantee that the credit card information is secure, although every effort is made to ensure that it is.

Contact us with your questions or concerns. Your privacy is important to us. Contact us at: 612-822-0500 or mail us at 4604 Chicago Avenue, Minneapolis, MN 55407.

8. Discontinuing Contact Upon Request
You can discontinue contact by emailing info@mnovarian.org, phone 612-822-0500 or mailing a request to 4604 Chicago Avenue, Minneapolis, MN 55407.

It is the policy of Minnesota Ovarian Cancer Alliance (MOCA) to discontinue contacting any person upon that person’s oral or written request directed to the organization. MOCA shall maintain a record of all requests by persons who indicate to MOCA that they do not wish to be contacted by or on behalf of MOCA.

Limitation
This policy does not prohibit contact by MOCA that is solicited by a person or a person’s representative, even if the person or his/her representative have requested to be placed on the “do not contact list.” Contact by MOCA that is solicited by a person whose name appears on “do not contact” list shall be limited to providing a direct response to the person’s inquiry and shall not cause the person’s name to be removed from the “do not contact” list.

Procedure
Upon a person’s (or a person’s authorized representative’s) request that MOCA discontinue further contacts, the person’s name and address will be promptly modified to ensure that no further contact is made with the person.

Permanent Record
MOCA will maintain a record of all requests for discontinuance of contacts, effective with the adoption of this policy by MOCA’s board of directors. Oral requests will be recorded in writing by the staff of MOCA and maintained with the written requests. The records of persons who have made such a request will be maintained by MOCA to the extent necessary for legal or liability purposes.

9. Children’s Online Privacy Protection Act
MOCA does not provide direct services to children 13 years of age or younger as outlined in the Children’s Online Privacy Protection Act of 1998.

10. Links on our site
The following organizations are linked on our website:

  • Ovarian Cancer Research Alliance
  • American Cancer Society
  • SEER Cancer Statistics Factsheets
  • My Gene Pool
  • Foundation for Women’s Cancer
  • Clinicaltrials.gov
  • National Cancer Institute
  • Qgiv.com
  • One.bidpal.com
  • ASC CAN’s Minnesota Action Center
  • W2films.live
  • Road to Recovery
  • Corporate Angel Network
  • Angel Foundation
  • Patient Advocate Foundation
  • Pay It Forward Foundation
  • Cancer Care
  • Family Reach
  • Cleaning Up for Cancer
  • Open Arms
  • Lotsa Helping Hands
  • Alska
  • Cancer Legal Care
  • Gilda’s Club
  • Look Good Feel Better
  • Pathways Minneapolis
  • LiveStrong Fertility
  • Stupid Cancer
  • Cactus Cancer Society
  • Child Welfare Information Gateway
  • Minnesota Network of Hospice and Palliative Care
  • Compassion and Choices
  • National Hospice and Palliative Care Organization
  • YouTube
  • Camp Mak-A-Dream
  • Minnesota Cancer Alliance
  • Foundation for Women’s Cancer
  • Minnesota Department of Health
  • National Cancer Institute
  • Cancer.net
  • Centers for Disease Control and Prevention
  • Cancer Community Collaborative
  • American Society of Clinical Oncology
  • National Cancer Institute
  • University of Minnesota: THRIVE
  • National Institutes of Mental Health
  • First Descents
  • Camp Good Days Women’s Wellness
  • Live By Living
  • Nancy’s List
  • Society of Gynecologic Oncology (SGO)
  • National Comprehensive Cancer Network (NCCN)

11. Donor Bill of Rights
To assure that MOCA merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in MOCA, we declare that all donors have these rights:

Donor Bill of Rights
Association of Fundraising Professionals (AFP), all rights reserved. Reprinted with permission from the Association of Fundraising Professionals.

Philanthropy is based on voluntary action for the common good. It is a tradition of giving and sharing that is primary to the quality of life. To assure that philanthropy merits the respect and trust of the general public, and that donors and prospective donors can have full confidence in the not-for-profit organizations and causes they are asked to support, we declare that all donors have these rights:

I. To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes.

II. To be informed of the identity of those serving on the organization’s governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities.

III. To have access to the organization’s most recent financial statements.

IV. To be assured their gifts will be used for the purposes for which they were given.

V. To receive appropriate acknowledgement and recognition.

VI. To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law.

VII. To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature.

VIII. To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors.

IX. To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share.

X. To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.

12. Questions about our policies
If you have any questions about this privacy statement, the practices of this site, or your dealings with this Web site, you can contact us at: info@mnovarian.org.

Updated and approved by MOCA’s Board of Directors 6/19/23

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